Home    Subscribe    Write for Us    List an Event/Business    Contact    Login
Join the Perth Mums Facebook Group to ask questions, seek advice, share experiences and join a vibrant and supportive community.

Hereditary Disease

by JAJ (follow)
Anonymous (176)     
Rating: 5/5

Hereditary Disease


Hi there, I was wondering what other people would do in my situation. I have a hereditary disease that runs in my family called Gerstmann Straussler Sheinker (GSS) Syndrome I haven't been tested for the mutated gene and I don't want to. My problem is that I am showing some symptoms (could just be paranoid) but if you showed symptoms would you opt to get tested for it or wait and see if the symptoms get worse. There is no treatment or cure and even if I do get tested and it comes back clear for actually having it, I still don't want to know if I have the mutated gene. My hubby is concerned because my mental health is unstable at the moment and thinks that if I do get diagnosed with it before I am mentally healthy that it will break me and make things worse. I honestly don't know what I should do. I am not asking for anyone to tell me what to do but I want peoples thoughts, opinions and why so I can try and make an informed choice. And at least asking on here there is no bias from family/friends etc Please and thank you.

See the answers on Facebook:

Family Photo offer affordable, outdoor photography sessions which are perfect for families with little ones who can't sit still!
Get yourself the perfect family portrait this year before the little ones grow up and cannot fit into that cute sailor suit anymore.
Perth Mums Group Facebook Page

Perth Mums Group Facebook Group

#Anonymous
Featured
‘Be Comfortable in Your Own Skin’ is a new campaign by Huggies that is encouraging parents to stop ‘parent-shaming’ each other.
Based in Osborne Park, Vogue Performers is far more than a performing arts school - it is a hub of energy and training and has been developing Perth’s finest performers for over 30 years.
Junior Engineers have the perfect school holiday activity to keep kids engaged and entertained!
The Perth Crochet Club meets weekly to learn crochet, meet other Perth mums, and have a good chat. Whether you're a complete beginner or a seasoned pro, everyone is welcome to come along!
The Mandurah Crochet Club meets weekly to learn crochet, meet other Mandurah mums, and have a good chat. Whether you're a complete beginner or a seasoned pro, everyone is welcome to come along!
Family Photo offer affordable, outdoor photography sessions which are perfect for families with little ones who can't sit still!
21 Mar - 19 Apr
Get yourself the perfect family portrait this year before the little ones grow up and cannot fit into that cute sailor suit anymore.
Join the conversation on the Perth Mums Facebook Group


Enjoy affordable family photography from MyFamilyPhoto.com.au

I like this Article - 1
[ print friendly ]
More Articles by JAJ
view all articles by JAJ
Articles by JAJ on Other Hubs
ID: 98176
The Mandurah Crochet Club meets weekly to learn crochet, meet other Mandurah mums, and have a good chat. Whether you're a complete beginner or a seasoned pro, everyone is welcome to come along!
Family Photo offer affordable, outdoor photography sessions which are perfect for families with little ones who can't sit still!
Get yourself the perfect family portrait this year before the little ones grow up and cannot fit into that cute sailor suit anymore.
The Perth Crochet Club meets weekly to learn crochet, meet other Perth mums, and have a good chat. Whether you're a complete beginner or a seasoned pro, everyone is welcome to come along!
Categories
January (129)
February (126)
March (142)
April (91)
May (132)
June (51)
July (50)
August (88)
September (115)
October (134)
November (122)
December (138)
 
Copyright 2012-2018 OatLabs ABN 18113479226. mobile version